Tuesday, May 30, 2017

It's Real



I love this video because I am reminded that I am so lucky to have fought for answers.  I never gave up when the doctors said, " I don't really see anything, come back in 6 weeks if you don't feel better".  I never went back because I knew they would tell me the same thing.  
      So, after all had failed, I went to an allergy/immunologist.  He changed my life.  He immediately detected my symptoms and within 3 months I finally knew the cause of my constant discomfort and weakness.  Common Variable Immunodeficiency.  My body doesn't make the antibodies to fight anything from cancer to a common cold.  Bacteria can live in my stomach until it dies on it's own.  Thus far, my levels are not low enough that I have been sick like others I talk to online.  I am still able to fight off a lot of nastiness, but in time, I will not be able to anymore. I spoke a little about it in my last post, so I won't bore you with the same details, but basically, my IgG and IgM are low.  My C cells (white blood cells) are also off in some areas, along with a random mono nuclear light chain.  The doc will keep an eye on this as it may be a super rare form of cancer (mylenoma), but it is highly unlikely.  I am so grateful for this doctor and so proud of myself that I pressed on and demanded answers.  


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