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Monday, September 23, 2019

Tuesday, June 5, 2018
That cycle
"If a particular stimulus is misinterpreted as a threat, this leads to immediate fight/flight/freeze responses (to non-threatening stimuli). This causes this system to respond to minor irritations in a totalistic manner (Streeck-Fischer & van der Kolk, 2000)."
Tuesday, May 30, 2017
It's Real
I love this video because I am reminded that I am so lucky to have fought for answers. I never gave up when the doctors said, " I don't really see anything, come back in 6 weeks if you don't feel better". I never went back because I knew they would tell me the same thing.
So, after all had failed, I went to an allergy/immunologist. He changed my life. He immediately detected my symptoms and within 3 months I finally knew the cause of my constant discomfort and weakness. Common Variable Immunodeficiency. My body doesn't make the antibodies to fight anything from cancer to a common cold. Bacteria can live in my stomach until it dies on it's own. Thus far, my levels are not low enough that I have been sick like others I talk to online. I am still able to fight off a lot of nastiness, but in time, I will not be able to anymore. I spoke a little about it in my last post, so I won't bore you with the same details, but basically, my IgG and IgM are low. My C cells (white blood cells) are also off in some areas, along with a random mono nuclear light chain. The doc will keep an eye on this as it may be a super rare form of cancer (mylenoma), but it is highly unlikely. I am so grateful for this doctor and so proud of myself that I pressed on and demanded answers.
Diagnosis, Grief, and Joy
So, just an update, I was in fact diagnosed with CVID. Although some of my antibodies responded to the Pnemonvax23, there were enough antibodies that did not respond, which means treatment is necessary. Treatment means subcutaneous gamma globulin (plasma) every 2 weeks indefinitely as I understand it now. Thankfully, we have been approved for a 2 month free trial while we await insurance approval. I should be getting a call from the nurse company tomorrow to set up the dates for in home training. I found this picture of a general set up, however, I will have 4 infusion sights until I have enough gamma magic energy to lose more weight. So multiply everything you see by 4.
Sunday, May 7, 2017
Auto immune deficiency, early ovarian failure, low thyroid, and posibly sleep apnea
I experienced post menopause at 27. I have been taking estrogen ever since. Over the Thanksgiving and Christmas break, and even into last summer, I started therapy after experiencing electrocution sensations in my brain. My joints started to swell, I gained weight rapidly, high cholesterol, high blood pressure, etc... So my gyno upped my estrogen to the max, and 6 weeks later, no avail, Still post menopausal. He referred me to a neurologist who referred me to an ENT for a sleep study. In the meantime, I saw an allergist/immunologist who discovered that I was allergic to nothing...but my 23 serotypes were nearly absent, meaning my body can't make what it needs to fight infections/viruses. My IGG and IGM are extremely low, my b cells are also low. B CELLS ARE A TYPE OF OF WHITE BLOOD CELL . T cells are also a type af white blood cell. These are also low. At this point, i would expect a bone marrow sample. But we'll see.
Saturday, May 6, 2017
Zebra Strong 2017

Sunday, March 12, 2017
End of Days
Wednesday, November 23, 2016
Repression
My demon arises every 6 months or so, reminding me that something has happened and it wasn't was my fault. I don't have memories, I have post traumatic stress and dreams. It has increased over the years, and with every year that passes, I feel more and more guilt, shame, and irresponsibility in my personal relationships. I also regain more memory as the years pass. That small little dick with a fat belly rubbing against my back. I know my panties were on at first, and my nightgown always stayed on. The room was blue. I started wearing socks to bed, as if they would protect me. I started sleeping with the hall light on, but he didn't live in my home. I remember being scolded for fondling my friend at 7. I don't know why I would do that. I remember feeling aroused when my other friend and I played babies as we breastfed them. I regularly used my stuffed animals for stimulation. My dreams now consist of being little, naked, and helpless. Sometimes I am an adult. There is usually a man exposing himself, unassuming like. That's all for now. Good night.
Wednesday, July 20, 2016
The Depression Beast
Sunday, February 22, 2015
Crazy
I had an insatiable need to write tonight. For some reason, this makes me feel guilty. I don't ever want to feel guilt for writing. I've been putting it off, because I tell myself that I should be in bed. Last week, I knew I needed to do laundry, the week before was another excuse. My husband will be up soon and I'm sure he'll wonder what the hell I'm still doing up. So now it is 3:58 AM. I came across the picture above when I googled "Am I Crazy". When I say that out loud, it's embarrassing. I mean what will people think? I don't think I need google's verification that indeed, I am different, but sometimes it's interesting to see what comes up. I probably am crazy. Why would I question myself if really I didn't already know. "It" runs in the family. I'd rather think of myself as a thinker. An "out of the box" thinker. I have never felt "normal". Maybe because my momma always told me I was special. I was a hyper and needy child. I would do anything for attention. I groomed myself to be polite, charming, and charismatic. Mom made me believe I was caring, smart, hard-working, and intuitive. I don't remember her ever telling me that I was beautiful or pretty. I'm certain that she did, but what I remembered was that she said I was kind, loving, and smart. And I believed her. Maybe I wasn't. I'll never know. But because I trusted and valued her, I grew up attaching these qualities to myself.
My journey growing up made me question myself. I was faced with choices and opportunities that I believed to be unique to me. Indeed I had tough situations that forced me into a life I knew nothing about. I'm sure all teens go through this, at least to some extent. But even my young self had so much volume, and I think that quality created a damaged psyche. My own personality enhanced the unfortunate events I was faced with. My bad choices left me in an inescapable state of guilt and shame. My mother calls me an empath. I do feel deeply...mostly from others. I feel a person I do not know in a room. I can't read their mind, but if they are feeling anything strong, I usually feel it too. It doesn't mean that I can "feel their pain...or joy", I just feel an energy. Sometimes it makes me nauseous. I have to at least consider the fact that maybe I was just an emotional child. Others could say that I am dramatic. No one wants to be labeled as a drama queen. I have made many choices. I read into them, then out of them. Then I dig back in to try and give myself closure. I started to realize that every time I tried to excavate...the walls got thicker. This makes things easier. And it make things harder.
As a teen I was capable of loving deeply. Giving myself. Putting 100% into the physical and also emotional side of a relationship. Emotionally, I was usually more mature than my partners. Sexually, I was more mature than their last partner. The physical was really the only part that made sense to me. Most of the boys I was involved with were eventually turned off by my intense attachment. Some fell in love with me. I never liked the ones that were nice back. Actually, I loved them the most, but knew that I didn't deserve them. Even in abusive relationships I felt some kind of commitment to please. I would do anything. I was my husband's dream. I would never say no to anything. This opened up the door for abuse and humiliation. I took pride in sacrificing myself...over and over...and over. I thought this would bring me an equal amount of commitment, loyalty, and love.
All of this "logic" put aside, I still have memories of feeling sexually uncomfortable in many settings and over time. As I research, I discount my gut...women WILL remember abuse, they just don't want to admit it. Amnesia from trauma is highly unlikely. If something happened to me, I would remember. Especially since my memory is so vivid during most of my childhood. Right?
So my sexual expertise at 11 is natural. Hiding in my bed under the covers with my panties off with my teddy bear's mouth in my vagina must be "experimenting" when you are 6. Waking up in my babysitters room that she shares with her husband and feeling extreme shame as he orders me out of the room is probably just me sleepwalking. After being ordered out, I wandered into the playroom and wished upon a star that my mom would get off early and come get me. I cried and cried. I remember the conversation she had with my mom. " She sleepwalks a lot". Maybe that was it.
On another note, I have memories with great grandpa. Spoon feeding me Rum because my cough is so bad. Sitting on the counter in his t-shirt, gagging. I see the bottle, and I see the spoon. I see his baby blue sheets and his messy bathroom. I remember wishing that grandma Alice could come back and sleep with Grandpa. I remember crying in his bathroom. But I trust my Grandpa, even in his passing. Although the circumstances make me question things, really I know that he was just taking care of me when my Mom was working late. He is not the perpetrator.
All of this regurgitation has been triggered by my husband's innocent and subtle request for answers. He sent me an innocent article reminding of a sex life. Initially I was really aggravated, sex is so superficial...like a nice car or a new couch. It feels good for a minute, but then it's over. Then I realized that my need for knowledge, expression, and meaning in life that is my feel good, is his equivalent to sex. If I love you, and you love me, and we are attracted to eachother...not only that...we adore eachother...why does it seem impossible for me to show even a little affection, let alone desire sex with my loving husband? Why the fuck am I so crazy? Why do I resist sex after commitment has been made?
Is it my way of controlling my environment? Am I a narcissist? I hear they like to have their cake and eat it too. I feel selfish. I tried counseling (more than once). In my first marriage, and in desperation to find a cure for my sexual dysfunction, I sought out the only licensed psychologist in Cedar City. I arrived in his office like a deer in the headlights with a $100 bill in my pocket. I confessed that I do not have a desire to have sex with my husband, and I don't know what to do. Here's what he told me:
Does your husband go to work? Yes. Does he go everyday? Yes. Does he provide for you and your children? Yes. What if he decided one day that he just wanted to stop. He stopped working, stopped providing. Would that be fair? No. Well, you have a responsibility to your husband just as he has to you. I left his office in tears and genuinely pissed off.
This post will go on...but for now I am tired. My family is tired as they have felt my sadness over the last few months. I need to energize the positive, and let it lift me up...otherwise I will surely fall in another hole.
Saturday, September 20, 2014
Weight Loss
Wednesday, August 31, 2011
Tuesday, March 15, 2011
I am sleep walking.
I am in trouble. I know this sounds silly but this is the first time I ever wish upon a star. I don't even remember what I wished for...but I was in my nightgown...and my babysitter was mad that I was awake...and I was afraid of her hairy husband in his underwear. A few years later my mom has a best friend. She has a daycare business. I love Donna with all my heart I trust her as someone to take care of me. One day she collapses against the wall. She is drunk all the time... I am 8 or 9, and immediately I feel an urgency to help. I am scolded for calling 911. We are at a wedding for someone in Donna's family. My Mom says I am not allowed to go "over there" but for some reason I remember going "over there" to the guest house. Mostly it was empty except for Ricky.
He has a daughter named Sarah and he plays guitar. Ye's yucky too. That's why I wasn't supposed to go there.
Sunday, February 6, 2011
Christina Aguilera and the "National Anthem"
~Peter F. Drucker
~Harold S. Geneen
Monday, January 17, 2011
I still love this song...reminds me of high school :-)
You're so good to me
I know but I can't change
tried to tell you
but you look at me like maybe
I'm an angel underneath
innocent and sweet.
Yesterday I cried,
must have been relieved
to see the softer side
I can understand
how you'd be so confused
I don't envy you
I'm a little bit of everything
All rolled into one
[Chorus]
I'm a bitch, I'm a lover
I'm a child, I'm a mother
I'm a sinner, I'm a saint
I do not feel ashamed
I'm your hell, I'm your dream
I'm nothing in between
You know you wouldn't want it any other way
So take me as I am
This may mean
You'll have to be a stronger man
Rest assured that
when I start to make you nervous
and I'm going to extremes
Tomorrow I will change
And today won't mean a thing
[Chorus]
I'm a bitch, I'm a tease
I'm a goddess on my knees
When you hurt, when you suffer
I'm an angel undercover
I've been numb, I'm revived
Can't say I'm not alive
You know I wouldn't want it any other way
Thursday, January 13, 2011
Euphoria
Sunday, December 26, 2010
More quotes...sorry I love em :-)

It is cruel, you know, that music should be so beautiful. It has the beauty of loneliness of pain: of strength and freedom. The beauty of disappointment and never-satisfied love. The cruel beauty of nature and everlasting beauty of monotony.
Benjamin Britten
I have always imagined that Paradise will be a kind of library.
Jorge Luis Borges
Music expresses that which cannot be said and on which it is impossible to be silent.
Victor Hugo
For me the greatest beauty always lies in the greatest clarity.
Gotthold Ephraim Lessing
Beauty is only skin deep. If you go after someone just because she's beautiful but don't have anything to talk about, it's going to get boring fast. You want to look beyond the surface and see if you can have fun or if you have anything in common with this person.
Amanda Peet
A beauty is a woman you notice; a charmer is one who notices you.
Adlai E. Stevenson
A woman's life can really be a succession of lives, each revolving around some emotionally compelling situation or challenge, and each marked off by some intense experience.
Wallis Simpson
A man who carries a cat by the tail learns something he can learn in no other way.
Mark Twain
Human beings, who are almost unique in having the ability to learn from the experience of others, are also remarkable for their apparent disinclination to do so.
Douglas Adams
Judgment comes from experience - and experience comes from bad judgment.
Walter Wriston
There is nothing so easy to learn as experience and nothing so hard to apply.
Josh Billings
When you have really exhausted an experience you always reverence and love it.
Albert Camus